UCrystal Evans unexhala malunga neentsholongwane ezikhula ngaphakathi kwiityhubhu ze-silicone ezidibanisa uqhoqhoqho lwakhe kwisixhobo sokungenisa umoya esimpompa umoya emiphungeni yakhe.
Phambi kobhubhane, umfazi oneminyaka engama-40 ubudala onesifo se-neuromuscular esiqhubekayo walandela inkqubo engqongqo: Watshintsha ngononophelo iisekethe zeplastiki ezihambisa umoya ovela kwi-ventilator izihlandlo ezihlanu ngenyanga ukugcina ubunyumba.
Kodwa ngoku, le misebenzi iye yaba nzima kakhulu.Ukunqongophala kwe-silicone ye-medical-grade kunye ne-plastic ye-tubing kwakuthetha ukuba wayefuna kuphela isiphaluka esitsha rhoqo ngenyanga.Ukusukela ekuphumeni kweetyhubhu ezintsha ze-tracheostomy ekuqaleni kwenyanga edlulileyo, u-Evans wabilisa nantoni na kwakufuneka abulale inzala ngaphambi kokusetyenziswa kwakhona, wathatha i-antibiotics ukuze abulale naziphi na iintsholongwane ezinokuthi ziphosakele, kwaye wayenethemba lokungcono. isiphumo.
“Awufuni nje ukubeka emngciphekweni usulelo kwaye uphelele esibhedlele,” utshilo, esoyika ukuba angachanabeka kusulelo olunokubulala lwe-coronavirus.
Ngengqiqo yokwenyani, ubomi buka-Evans bubanjwe kuphazamiso lokubonelela okubangelwa ngubhubhani, owenziwe mandundu yimfuno yezi zixhobo zifanayo kwizibhedlele ezixakekileyo.Oku kunqongophala kuzisa imiceli mngeni yobomi nokufa kuye nakwizigidi zezigulana ezinganyangekiyo, uninzi lwazo esele lusiva ukuba ziziphilela ngokwazo.
Imeko ka-Evans iye yaba mandundu kutshanje, umzekelo xa wosulelwa sisifo soqhoqhoqho esinokubeka ubomi bakhe esichengeni nangona kukho amanyathelo okhuseleko awathathayo. Ngoku uthatha iyeza lokubulala iintsholongwane, abelifumene njengomgubo ekufuneka lixutywe namanzi angenazintsholongwane – enye into anengxaki yokuyifumana.” Yonke into injalo,” utshilo uEvans.
Okwenza nzima imeko yakhe kunye nezinye izigulana ezigula kakhulu ngumnqweno wabo onzima wokuhlala kude nesibhedlele kuba besoyikela ukuba bangosulelwa yi-coronavirus okanye ezinye iintsholongwane kwaye bachaphazeleke kakhulu. Nangona kunjalo, iimfuno zabo zifumana ingqalelo encinci, ngokuyinxenye ngenxa yokuba ubomi babo bodwa bubenza bangabonakali, kwaye ngokuyinxenye ngenxa yokuba banexabiso elincinci lokuthenga xa lithelekiswa nababoneleli bezempilo abakhulu abafana nezibhedlele.
"Indlela ubhubhane osingathwa ngayo, uninzi lwethu luqala ukuzibuza - ngaba abantu abakhathali ngobomi bethu?" uthe uKerry Sheehan wase-Arlington, eMassachusetts, i-suburb esenyakatho yeBoston, oye wajamelana nokunqongophala kwesondlo se-intravenous, okwamvumela ukuba ahlupheke ngenxa yesifo se-tissue edibeneyo eyenza kube nzima ukufumana izondlo zokutya.
Ezibhedlele, oogqirha badla ngokufumana izinto ezithatha indawo yezinto ezingafumanekiyo, kubandakanywa ii-catheters, iipakethi ze-IV, izongezo zesondlo, kunye namayeza afana ne-heparin, i-blood thinner esetyenziswa ngokuqhelekileyo.
"Omnye wemibuzo emikhulu kulo bhubhani kukuba kwenzeka ntoni xa kungekho nto yaneleyo efunekayo, njengoko i-COVID-19 ibeka iimfuno ezingaphezulu kwinkqubo yokhathalelo lwempilo?" utshilo uColin Killick, umlawuli olawulayo weDibano loMgaqo-nkqubo wokuKhubazeka. Lo mfelandawonye ngumbutho waseMassachusetts olwela amalungelo abantu abakhubazekileyo.” Kuyo yonke imeko, impendulo yeyokuba abantu abaneziphene bangena kwelilize.
Kunzima ukwazi ngokuthe ngqo ukuba bangaphi abantu abanezigulo ezingapheliyo okanye abakhubazekileyo abahlala bodwa, kunokuba babe ngamaqela, banokuchatshazelwa kukunqongophala kokubonelela okubangelwa ngubhubhane, kodwa uqikelelo lukwishumi lezigidi.Ngokutsho kwamaZiko oLawulo lweSifo kunye noThintelo, abantu aba-6 kwabalishumi e-US banesifo esinganyangekiyo, kwaye ngaphezulu kwe-61 yezigidi zokukhubazeka, kubandakanywa abantu baseMelika abakhubazekileyo, kubandakanywa uhlobo oluthile lokukhubazeka ukukwazi ukuphila ngokuzimela.
Iingcali zithi izixhobo zonyango sele zoluliwe ngenxa yokuphazamiseka kobonelelo kunye nokwanda kwemfuno evela kwizibhedlele ezonganyelwe ngabaguli be-COVID-19 kwezinye iindawo zelizwe kangangeenyanga.
Ezinye izixhobo zonyango zihlala zinqongophele, utshilo uDavid Hargraves, usekela mongameli omkhulu wobonelelo kwiNkulumbuso, onceda izibhedlele ukulawula iinkonzo.
Ngokwesiqhelo, kunokubakho izinto ezahlukeneyo ezili-150 ezibuyiselwe umva kuyo nayiphi na iveki,” utshilo uHargraves. ”Namhlanje inani lingaphezulu kwe-1,000 XNUMX.
I-ICU Medical, inkampani eyenza i-tracheostomy tubes esetyenziswe ngu-Evans, yavuma ukuba ukunqongophala kunokubeka "umthwalo omkhulu owongezelelweyo" kwizigulane ezixhomekeke kwi-intubation ukuphefumula.Inkampani yathi yayisebenza ukulungisa imiba yokubonelela.
"Le meko yandiswa kukunqongophala kwe-silicone kwishishini, eyona nto iphambili ekuvelisweni kweetyhubhu ze-tracheostomy," utshilo umkhulumeli wenkampani uTom McCall kwi-imeyile.
“Ukunqongophala kwezinto kukhathalelo lwempilo ayonto intsha,” wongeze watsho uMcCall.” Kodwa uxinzelelo olusuka kubhubhani kunye nemingeni ekhoyo ngoku yokubonelela ngempahla kunye nemiceli mngeni yomthwalo iye yabenza mandundu - zombini ngokwenani leemveliso kunye nabavelisi abachaphazelekayo, kunye nobude bexesha lokunqongophala kwaye kuya kuvakala.
U-Killick, onengxaki ye-motor dysgraphia, imeko ebangela ubunzima kwizakhono ezifanelekileyo zemoto ezifunekayo ukubrasha amazinyo okanye ukubhala ngesandla, uthe kwiimeko ezininzi ngexesha lo bhubhani, kunzima kakhulu kubantu abakhubazekileyo okanye izigulo ezinganyangekiyo ukuba bafikelele kwimpahla kunye nokhathalelo lwezonyango, Ngenxa yokonyuka kwemfuno yoluntu yezi zinto. Kuya kunceda, abanye abaninzi basebenzisa ichiza ukunqanda okanye ukunyanga i-Covid-19 Virus.
“Ndicinga ukuba yinxalenye yephazili enkulu yabantu abakhubazekileyo bajongwe njengabangabafanelanga izibonelelo, abalufanelanga unyango, abangafanelwanga nkxaso yobomi,” utshilo uKillick.
USheehan uthe uyayazi into yokuba kunjani ukujongelwa phantsi.Kangangeminyaka, umntu oneminyaka engama-38 ubudala, owayezicingela engeyoye-binary kwaye wasebenzisa izimelabizo ezithi “yena” kunye “nabo” ngokutshintshanayo, wayesokola ukutya kunye nokugcina ubunzima obuzinzileyo njengoko oogqirha bezabalaza ukucacisa ukuba kutheni wayehlisa ubunzima ngokukhawuleza.
Ekugqibeleni, i-geneticist yafumanisa ukuba unesifo esinqabileyo esibizwa ngokuba yi-Ehlers-Danlos syndrome - imeko eyongeziweyo ngenxa yokulimala kumqolo wesibeleko emva kwengozi yemoto.Emva kokuba ezinye iindlela zonyango zingaphumelelanga, ugqirha wakhe wamyala ukuba afumane isondlo ekhaya ngokusebenzisa i-IV fluids.
Kodwa ngamawakawaka ezigulana ze-Covid-19 ezikwiiyunithi zokhathalelo olunzima, izibhedlele ziqala ukunika ingxelo yokunqongophala kwezongezelelo zesondlo.
“Okwangoku bendilele,” watsho.” Andizange ndibe namandla aneleyo kwaye ndisavuka ndiziva ngathi andiphumli.”
USheehan uthe sele eqalile ukuhla emzimbeni kwaye izihlunu zakhe ziya zicutheka, njengangaphambi kokuba afunyanwe kwaye aqale ukufumana isondlo se-IV.” Umzimba wam uyazitya,” utshilo.
Ubomi bakhe kulo bhubhani buye buye baba nzima ngenxa yezinye izizathu. Ngokuphakanyiswa kwemfuneko yemaski, ucinga ngokutsiba unyango lomzimba ukuze agcine ukusebenza kwezihlunu nokuba unesondlo esinqongopheleyo - ngenxa yokonyuka komngcipheko wosulelo.
“Iya kundenza ndincame izinto ezimbalwa zokugqibela ebendibambelele kuzo,” utshilo, esithi ebephoswe ziindibano zosapho kunye nokundwendwela umtshana wakhe amthandayo kule minyaka mibini idlulileyo.” UZoom unokukuxhasa kakhulu.
Kwanangaphambi kobhubhane, umbhali wencwadi yezothando oneminyaka engama-41 ubudala uBrandi Polatty kunye noonyana bakhe ababini abakwishumi elivisayo, uNowa noYona, babehlala eJefferson, eGeorgia. ukwahlukana nabanye ekhaya. Badinwe kakhulu kwaye banengxaki yokutya. Ngamanye amaxesha baziva begula kakhulu ukuba bangasebenza okanye baye esikolweni ixesha elizeleyo kuba ukuguqulwa kofuzo kuthintela iiseli zabo ekuveliseni amandla aneleyo.
Kwathatha oogqirha iminyaka ukuba basebenzise i-muscle biopsies kunye nokuhlolwa kwemfuza ukuqinisekisa ukuba banesifo esinqabileyo esibizwa ngokuba yi-mitochondrial myopathy ebangelwa ukuguqulwa kofuzo.Emva kwezilingo ezininzi kunye nephutha, intsapho yafumanisa ukuba ukufumana izondlo nge-tube yokutya kunye ne-IV fluids rhoqo (equlethe i-glucose, iivithamini kunye nezinye izongezo) zanceda ukucacisa inkungu yengqondo kunye nokunciphisa ukukhathala.
Ukugcina up kunye nonyango ukutshintsha ubomi, phakathi 2011 yaye 2013, bobabini oomama kunye namakhwenkwe elivisayo bafumana izibuko esisigxina esifubeni sabo, maxa wambi ebizwa centerline, edibanisa catheter kwi IV bag ukusuka Isifuba iqhagamshelwe emithanjeni kufutshane heart.The amazibuko kwenza kube lula ukulawula ulwelo IV ekhaya ngenxa yokuba Borattisntfint kwi-imfuneko yokutyhala kwi-hard- hunge iingalo ze-veins kunye neengalo ze-veins.
U-Brandi Poratti uthe nge-IV fluids rhoqo, wakwazi ukuphepha ukulaliswa esibhedlele kunye nokuxhasa intsapho yakhe ngokubhala iinoveli zothando.Nge-14, uYona ekugqibeleni unempilo ngokwaneleyo ukuba isifuba sakhe kunye ne-tube yokutya isuswe.Ngoku uthembele kumayeza omlomo ukulawula isifo sakhe.Umntakwabo omdala, uNowa, i-16, usadinga i-infusion, kodwa uziva eqinile ngokwaneleyo ukuba aphumelele esikolweni, afunde nomculo we-Gguitar.
Kodwa ngoku, enye yale nkqubela phambili isoyikiswa zizithintelo ezibangelwa ngubhubhane ekuboneleleni ngesaline, iingxowa ze-IV kunye ne-heparin ezisetyenziswa nguPolatty noNowa ukugcina ii-catheters zabo zicocekile kumahlwili egazi anokubulala kwaye banqande usulelo.
Ngokuqhelekileyo, uNowa ufumana i-5,500ml yolwelo kwiingxowa eziyi-1,000ml rhoqo emva kweeveki ezimbini.
"Akubonakali ngathi yinto enkulu, akunjalo? Siza kutshintsha nje isikhwama sakho, "uBrandi Boratti uthe. "Kodwa loo manzi ingena kwindawo ephakathi, kwaye igazi liya entliziyweni yakho. Ukuba unesifo kwi-port yakho, ukhangele i-sepsis, ngokuqhelekileyo kwi-ICU. Yiloo nto eyenza i-centerline ibe yoyikeka. "
Umngcipheko wokusuleleka kwi-centerline yinkxalabo yokwenene kunye neyona nto ibalulekileyo kubantu abafumana olu nyango oluxhasayo, utshilo uRebecca Ganetzky, ugqirha ohambayo kwiNkqubo yeFrontiers kwiMitochondrial Medicine kwiSibhedlele saBantwana sasePhiladelphia.
Intsapho yasePolatty yenye yezigulane ezininzi zesifo se-mitochondrial ezijongene nokukhetha okunzima ngexesha lobhubhane, wathi, ngenxa yokunqongophala kweengxowa ze-IV, iityhubhu kunye nefomula enika isondlo.Ezinye zezi zigulana azikwazi ukwenza ngaphandle kwe-hydration kunye nenkxaso yesondlo.
Olunye ukuphazamiseka kwekhonkco lokubonelela kushiye abantu abakhubazekileyo bengakwazi ukutshintshela iindawo zesitulo esinamavili kunye nezinye izibonelelo ezibavumela ukuba baphile ngokuzimeleyo.
U-Evans, umfazi waseMassachusetts owayekwi-ventilator, akazange alishiye ikhaya lakhe ngaphezu kweenyanga ezine emva kokuba i-wheelchair ye-wheelchair iphuma ngaphandle komnyango wangaphambili wabola ngendlela engenakulungiseka kwaye kwafuneka isuswe ekupheleni kukaNovemba.
Njengoko wayelindele ukuba ixabiso lehle, u-Evans kwafuneka athembele kuncedo lwabongikazi kunye nabancedisi bezempilo basekhaya.
“Uluntu aluyazi into uninzi lwethu olujongana nayo ngexesha lo bhubhani, xa befuna ukuphuma bayokuphila ubomi babo,” utshilo u-Evans. "Kodwa ke bayasasaza intsholongwane."
Izitofu zokugonya: Ngaba ufuna isitofu sesine se-coronavirus?
IsiKhokelo seMask: Ijaji yomanyano ilurhoxisile ugunyaziso lwemaski yothutho, kodwa iimeko ze-covid-19 ziyanyuka kwakhona.Sidale isikhokelo sokukunceda wenze isigqibo sokuba uqhubeke unxibe isigqubuthelo sobuso.Iingcali ezininzi zithi kufuneka uqhubeke uzinxibe kwinqwelomoya.
Ukulandelela intsholongwane: Bona amanani ekoronavirus yamva nje kunye nendlela ii-omicron ezahlukeneyo ezisasazeka ngayo kwihlabathi liphela.
Uvavanyo lwasekhaya: Nantsi indlela yokusebenzisa iimvavanyo ze-covid zasekhaya, zifumaneka phi, kwaye zahluke njani kuvavanyo lwe-PCR.
Iqela elitsha le-CDC: Iqela elitsha lezenzululwazi zezempilo zisekwe ukubonelela ngedatha yexesha langempela kwi-coronavirus kunye nokuqhambuka kwexesha elizayo - "inkonzo yemozulu yelizwe" ukuqikelela amanyathelo alandelayo kulo bhubhani.
Ixesha lokuposa: Jun-28-2022