Ngenxa yokunqongophala kwendyikityha, izigulana ezinganyangekiyo zijongene nemingeni yobomi nokufa

Ngenxa yokunqongophala kwendyikityha, izigulana ezinganyangekiyo zijongene nemingeni yobomi nokufa

Ngenxa yokunqongophala kwendyikityha, izigulana ezinganyangekiyo zijongene nemingeni yobomi nokufa

UCrystal Evans unexhala malunga neentsholongwane ezikhula ngaphakathi kwiityhubhu ze-silicone ezidibanisa uqhoqhoqho lwakhe kwisixhobo sokungenisa umoya esimpompa umoya emiphungeni yakhe.
Ngaphambi kobhubhane, inkosikazi eneminyaka engama-40 ubudala enesifo se-neuromuscular eqhubekayo yalandela inkqubo engqongqo: Uthathe indawo ngononophelo iisekethe zeplastiki ezihambisa umoya ophuma kwi-ventilator izihlandlo ezihlanu ngenyanga ukugcina ubunyumba. inyanga.
Kodwa ngoku, le misebenzi iye yaba nzima kakhulu. Ukunqongophala kwe-silicone yebanga lezonyango kunye neplastiki yetyhubhu kwakuthetha ukuba wayefuna kuphela isekethe entsha qho ngenyanga. phambi kokusetyenziswa kwakhona, wathatha amayeza okubulala iintsholongwane ukuze abulale naziphi na iintsholongwane ezinokuthi ziphoswe, kwaye nethemba lokungcono.isiphumo.
“Awufuni nje ukubeka emngciphekweni usulelo kwaye ugqibele esibhedlele,” utshilo, esoyika ukuba angachanabeka kwisifo esibulalayo se-coronavirus.
Ngokwenyani, ubomi buka-Evans buye babanjwa ukuze babonelele ngeziphazamiso ezibangelwa ngubhubhani, oye wandiswa yimfuno yezi zixhobo zifanayo kwizibhedlele ezixakekileyo. Oku kunqongophala kuzisa imiceli mngeni yobomi nokufa kuye nakwizigidi zabantu abagulela ukufa. izigulana, uninzi lwazo esele zisokola ukuziphilisa.
Imeko ka-Evans iye yaba mandundu mvanje, umzekelo xa wosulelwa sisifo soqhoqhoqho esinokubeka ubomi bakhe esichengeni phezu kwazo nje zonke izilumkiso awazenzayo. Ngoku uthatha iyeza lokubulala iintsholongwane ebelinokhetho lokugqibela, alifumana njengomgubo ekufuneka lixutywe namanzi angenazintsholongwane. – enye into anengxaki yokuyifumana.” Yonke into encinci injalo,” utshilo u-Evans.” Ikwimigangatho emininzi eyahlukeneyo kwaye yonke into ibutshabalalisa ubomi bethu.”
Eyona nto iyenza nzima imeko yakhe kunye nezinye izigulana ezigula ngokungapheliyo ngumnqweno wabo ongxamisekileyo wokuhlala kude nesibhedlele kuba besoyika ukuba bangosulelwa yi-coronavirus okanye ezinye iintsholongwane kwaye bachaphazeleke kakhulu. zingabonakali, kwaye ngokuyinxenye ngenxa yokuba zinexabiso elincinci lokuthenga xa lithelekiswa nababoneleli bezempilo abakhulu abafana nezibhedlele.
"Indlela ubhubhane osingathwa ngayo, uninzi lwethu luqala ukuzibuza - ngaba abantu abakhathali ngobomi bethu?"uthe uKerry Sheehan wase-Arlington, eMassachusetts, i-suburb esenyakatho yeBoston, oye wajamelana nokunqongophala kwesondlo se-intravenous, okwamvumela ukuba ahlupheke ngenxa yesifo se-tissue edibeneyo eyenza kube nzima ukufumana izondlo zokutya.
Ezibhedlele, oogqirha badla ngokufumana izinto ezithatha indawo yezinto ezingafumanekiyo, kuquka iicatheter, iipakethi ze-IV, izongezo zesondlo, kunye namayeza afana ne-heparin, i-blood thinner esetyenziswa ngokuqhelekileyo. ukulawula inyameko yabo ekhaya, nokungabi nayo i-inshorensi kunokuba nemiphumo emibi.
"Omnye wemibuzo emikhulu kulo bhubhani kukuba kwenzeka ntoni xa kungekho nto yaneleyo efunekayo, njengoko i-COVID-19 ibeka iimfuno ezingaphezulu kwinkqubo yokhathalelo lwempilo?"utshilo uColin Killick, umlawuli olawulayo weDibano loMgaqo-nkqubo wokuKhubazeka.Lo mfelandawonye ngumbutho waseMassachusetts omela amalungelo abantu abakhubazekileyo.” Kuyo yonke imeko, impendulo yeyokuba abantu abaneziphene bangena kwelilize.
Kunzima ukwazi ngokuthe ngqo ukuba bangaphi abantu abanezigulo ezingapheliyo okanye abakhubazekileyo abahlala bodwa, kunokuba babe ngamaqela, banokuchatshazelwa kukunqongophala kokubonelela okubangelwa ngubhubhane, kodwa uqikelelo lukwishumi lezigidi.Ngokutsho kwamaZiko oLawulo lweSifo kunye noThintelo. , I-6 kubantu be-10 e-US banesifo esingapheliyo, kwaye ngaphezu kwe-61 yezigidi zaseMelika banohlobo oluthile lokukhubazeka - kubandakanywa ukuhamba okulinganiselwe, ukuqonda, ukuva, umbono, okanye ukukwazi ukuphila ngokuzimela.
Iingcali zithi izixhobo zonyango sele zoluliwe ngenxa yokuphazamiseka kobonelelo kunye nokwanda kwemfuno evela kwizibhedlele ezonganyelwe ngabaguli be-COVID-19 kwezinye iindawo zelizwe kangangeenyanga.
Ezinye izixhobo zonyango zihlala zinqongophele, utshilo uDavid Hargraves, usekela mongameli omkhulu wobonelelo kwiNkulumbuso, onceda izibhedlele ukulawula iinkonzo.
Ngokwesiqhelo, kunokubakho izinto ezahlukeneyo ezili-150 ezigcinwe ngasemva kuyo nayiphi na iveki,” utshilo uHargraves.
I-ICU Medical, inkampani eyenza i-tracheostomy tubes esetyenziswe ngu-Evans, yavuma ukuba ukunqongophala kunokubeka "umthwalo omkhulu owongezelelweyo" kwizigulane ezixhomekeke kwi-intubation ukuphefumula.Inkampani yathi yayisebenza ukulungisa imiba yokubonelela.
"Le meko yandiswa kukunqongophala kwe-silicone kwishishini, eyona nto iphambili ekuvelisweni kweetyhubhu ze-tracheostomy," utshilo umkhulumeli wenkampani uTom McCall kwi-imeyile.
“Ukunqongophala kwezinto kukhathalelo lwempilo ayonto intsha,” wongeze watsho uMcCall. ”Kodwa uxinzelelo oluvela kubhubhani kunye nemingeni ekhoyo yokubonelelwa kwehlabathi kunye nemiceli mngeni yomthwalo ibenze mandundu - zombini ngokwenani leemveliso kunye nabavelisi abachaphazelekayo, kunye nobude bexesha ukunqongophala kube kwaye kuya kuviwa.”
UKillick, onesifo semotor dysgraphia, imeko ebangela ubunzima kwizakhono ezifanelekileyo zemoto ezifunekayo ukuxukuxa amazinyo okanye ukubhala ngokubhala ngesandla, uthe kwiimeko ezininzi ngexesha lo bhubhani, kunzima kakhulu ukuba abantu abakhubazekileyo okanye izigulo ezingapheliyo bafikelele kwizixhobo. kunye nokhathalelo lwezonyango, Ngenxa yokunyuka kwemfuno yoluntu kwezi zinto.Kwangoko, ukhumbule indlela abaguli abanezifo ezizimelayo ezabalazela nzima ngayo ukuhlangabezana nemimiselo yabo ye-hydroxychloroquine kuba, ngaphandle kobungqina bokuba iya kunceda, abanye abaninzi basebenzisa ichiza ukunqanda okanye ukunyanga. Intsholongwane ye-covid19.
“Ndicinga ukuba yinxalenye yephazili enkulu yabantu abakhubazekileyo bajongwe njengabangabafanelanga izibonelelo, abalufanelanga unyango, abalufanelanga inkxaso yobomi,” utshilo uKillick.
U-Sheehan uthe uyayazi into yokuba kunjani ukujongelwa phantsi. Kwiminyaka engama-38 ubudala, owayezicingela njengomntu ongeyena-bhinary kwaye wasebenzisa isimelabizo esithi "yena" kunye "nabo" ngokungafaniyo, wayesokola ukutya kunye nokugcina ubunzima obuzinzileyo njengoogqirha. uye wasokola ukuchaza ukuba kutheni esihla ngokukhawuleza kangaka .5'7″ kwaye ubunzima bakhe bufikelele kwi-93 lbs.
Ekugqibeleni, i-geneticist yafumanisa ukuba unesifo esinqabileyo esibizwa ngokuba yi-Ehlers-Danlos syndrome - imeko eyongeziweyo ngenxa yokulimala kumqolo wesibeleko emva kwengozi yemoto. ulwelo.
Kodwa ngamawakawaka ezigulana ze-Covid-19 ezikwiiyunithi zokhathalelo olunzima, izibhedlele ziqala ukunika ingxelo yokunqongophala kwezongezelelo zesondlo ezifakwa emithanjeni. waqala ngeedosi ezintathu kuphela. Kwakukho iiveki apho wayeneentsuku ezimbini kuphela kwezisixhenxe phambi kokuthunyelwa kwakhe okulandelayo.
“Okwangoku bendilele,” watsho.” Andizange ndibe namandla aneleyo kwaye ndisavuka ndiziva ngathi andiphumli.”
USheehan uthe sele eqalile ukuhla emzimbeni kwaye izihlunu zakhe ziya zicutheka, njengangaphambi kokuba afunyanwe kwaye aqale ukufumana isondlo se-IV.” Umzimba wam uyazitya,” utshilo.
Ubomi bakhe kulo bhubhani buye buye baba nzima ngenxa yezinye izizathu. Ngokuphakanyiswa kwemfuno yemaski, ucinga ngokutsiba unyango lomzimba ukuze agcine ukusebenza kwezihlunu nokuba unesondlo esinqongopheleyo - ngenxa yokonyuka komngcipheko wosulelo.
“Iya kundenza ndincame izinto ezimbalwa zokugqibela ebendibambelele kuzo,” utshilo, esithi ebephoswe ziindibano zosapho kunye nokundwendwela umtshana wakhe amthandayo kule minyaka mibini idlulileyo.” UZoom unokukuxhasa kakhulu.
Kwanangaphambi kobhubhane, umbhali wencwadi yezothando oneminyaka engama-41 ubudala uBrandi Polatty kunye noonyana bakhe ababini abakwishumi elivisayo, uNowa noYona, babehlala eJefferson, eGeorgia.ukwahlukana nabanye ekhaya. Badinwe kakhulu kwaye banengxaki yokutya.Ngamanye amaxesha baziva begula kakhulu ukuba bangasebenza okanye baye esikolweni ixesha elizeleyo kuba ukuguqulwa kofuzo kuthintela iiseli zabo ekuveliseni amandla aneleyo.
Kwathatha oogqirha iminyaka ukuba basebenzise i-muscle biopsies kunye nokuhlolwa kwemfuza ukuqinisekisa ukuba banesifo esinqabileyo esibizwa ngokuba yi-mitochondrial myopathy ebangelwa ukuguqulwa kwemfuza. , iivithamini kunye nezinye izongezo) zanceda ukucacisa inkungu yengqondo kunye nokunciphisa ukudinwa.
Ukugcina unyango olutshintsha ubomi, phakathi kwe-2011 kunye ne-2013, bobabini oomama kunye namakhwenkwe akwishumi elivisayo bafumana i-port esisigxina esifubeni sabo, ngamanye amaxesha ebizwa ngokuba yi-centerline, edibanisa i-catheter kwi-bag ye-IV evela kwi-Isifuba idityaniswe kwimithambo ekufutshane. the heart.Izibuko kwenza kube lula ukulawula ulwelo IV ekhaya kuba Borattis musa ukuzingela nzima-to-ukufumana imithambo kunye nokutyhala iinaliti ezingalweni zabo.
UBrandi Poratti uthe nge-IV fluids rhoqo, wakwazi ukunqanda ukulaliswa esibhedlele kunye nokuxhasa intsapho yakhe ngokubhala iinoveli zothando.Nge-14, uYona ekugqibeleni unempilo ngokwaneleyo ukuba isifuba sakhe kunye ne-tube yokutya isuswe.Ngoku uthembele kumayeza omlomo ukuze alawule impilo yakhe. isifo.Umkhuluwa wakhe, uNowa, oneminyaka eyi-16, usadinga ukuxiliswa, kodwa uziva eqinile ngokwaneleyo ukuba afundele i-GED, aphumelele, kwaye aye esikolweni somculo ukuze afunde isiginci.
Kodwa ngoku, enye yale nkqubela phambili isoyikiswa zizithintelo ezibangelwa ngubhubhane ekuboneleleni ngesaline, iingxowa ze-IV kunye ne-heparin ezisetyenziswa nguPolatty noNowa ukugcina ii-catheters zabo zicocekile kumahlwili egazi anokubulala kwaye banqande usulelo.
Ngokuqhelekileyo, uNowa ufumana i-5,500ml yolwelo kwiingxowa eziyi-1,000ml rhoqo emva kweeveki ezimbini. usulelo.
“Akubonakali ngathi yinto enkulu, akunjalo?Siza kuyitshintsha nje ibhegi yakho,” utshilo uBrandi Boratti.” Kodwa olo lwelo lungena kwindawo esembindini, kwaye igazi liya entliziyweni yakho.Ukuba unosulelo kwizibuko lakho, ujonge i-sepsis, ngokuqhelekileyo kwi-ICU.Yiloo nto eyenza ukuba umgca ophakathi woyike.”
Umngcipheko wokusuleleka kwi-centerline yinkxalabo yokwenene kunye neyona nto ibalulekileyo kubantu abafumana olu nyango oluxhasayo, utshilo uRebecca Ganetzky, ugqirha ohambayo kwiNkqubo yeFrontiers kwiMitochondrial Medicine kwiSibhedlele saBantwana sasePhiladelphia.
Intsapho yasePolatty yenye yezigulane ezininzi zesifo se-mitochondrial ezijongene nokukhetha okunzima ngexesha lobhubhane, wathi, ngenxa yokunqongophala kweengxowa ze-IV, iityhubhu kunye nefomula enika isondlo.Ezinye zezi zigulana azikwazi ukwenza ngaphandle kwe-hydration kunye nenkxaso yesondlo.
Olunye ukuphazamiseka kwekhonkco lokubonelela kushiye abantu abakhubazekileyo bengakwazi ukutshintshela iindawo zesitulo esinamavili kunye nezinye izibonelelo ezibavumela ukuba baphile ngokuzimeleyo.
U-Evans, inkosikazi yaseMassachusetts eyayikwisixhobo sokungenisa umoya, ayizange ilishiye ikhaya layo isithuba esingaphezulu kweenyanga ezine emva kokuba indlela yokufikelela kwisitulo esinamavili ngaphandle kocango lwangaphambili kubola kangangokuba kwanyanzeleka ukuba isuswe ekupheleni kukaNovemba. unokukwazi ukuyihlawula ngomvuzo oqhelekileyo, yaye i-inshorensi yakhe inikela uncedo olulinganiselweyo kuphela.
Njengoko wayelindele ukuba ixabiso lehle, uEvans kwafuneka athembele kuncedo lwabongikazi kunye nabancedisi bezempilo basekhaya. ababeze kumnceda babechanabeke kwintsholongwane kane ubuncinane.
“Uluntu aluyazi into uninzi lwethu olujongana nayo ngexesha lo bhubhani, xa befuna ukuphuma bayokuphila ubomi babo,” utshilo u-Evans.Kodwa ke bayasasaza intsholongwane.
Ugonyo: Ngaba ufuna isitofu sesine se-coronavirus?
IsiKhokelo seMask: Ijaji yomdibaniso iyalurhoxisa ugunyaziso lokuhamba, kodwa iimeko ze-covid-19 ziyanyuka kwakhona. Senze isikhokelo sokukunceda uthathe isigqibo sokuba uqhubeke unxibe isigqubuthelo sobuso. Uninzi lweengcali zithi kufuneka uqhubeke uzinxibe. inqwelomoya.
Ukulandelela intsholongwane: Bona amanani ekoronavirus amva nje kunye nendlela ii-omicron ezahlukeneyo ezisasazeka ngayo kwihlabathi liphela.
Uvavanyo lwasekhaya: Nantsi indlela yokusebenzisa iimvavanyo ze-covid zasekhaya, zifumaneka phi, kwaye zahluke njani kuvavanyo lwe-PCR.
Iqela elitsha le-CDC: Iqela elitsha lezenzululwazi zezempilo ziye zasekwa ukunika idatha yexesha langempela kwi-coronavirus kunye nokuqhambuka kwexesha elizayo - "inkonzo yemozulu yelizwe" ukuqikelela amanyathelo alandelayo kulo bhubhani.


Ixesha lokuposa: Jun-28-2022